What's it really like to have Myotonic Muscular Dystrophy?
We want to do all that we can do to create awareness and educate the public on the diseases, conditions, and disorders that affect our members and other patients around the world.
**This is a new feature, so please don't be shy about sending any feedback, corrections, or suggestions**
Description:
We're looking to create more awareness for Myotonic Muscular Dystrophy. We’re looking for facts, quotes and stories about your life to share on our social media channels and beyond.
You can see an example video for Gastroparesis Awareness Month that was posted on Facebook here -- LINK
About Savvy Cooperative
Savvy Cooperative is the first and only patient-owned co-op that empowers people to use their health experiences to inform new products and services through surveys, interviews, product testing and more! It was founded by two patients who wanted to make sure people who shared their health experiences were fairly compensated. That’s why we are patient-owned and the majority of our profits go right back to our members!
Basic Info
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